The hardest hit would be on the 'Sandwich generation', a generation that takes care of their elderly parents while also trying to raise their younger generation. I would say the responsibilities are twice as heavy.
I would also highlight that most of the caregivers are leaning towards the older age, its not uncommon these days to see a 60year old taking care of a 80 year old..
Hence, my highlight that caregiver themselves should be supported and evaluated throughout their caregiving journey. In all honesty, how often do we focus on caregivers?
As clinicians, once we diagnose dementia, we tend to focus on our patient as our whole entire universe. What can we do for a change to make our care extend towards caregivers?
-care giver assessment (screen for their physical and mental suitability). This includes screening caregivers for mental health issues and cognitive impairment.
-educating care givers on the challenging journey ahead, preparing them on their role transitions and educating them on the basics of dementia
-mobilising their supports (genogram to understand family dynamics, atlas caremaps).
-educating about burnout (ways to seek external help, community supports that are available)
-psychotherapies including family therapies.
-grief work (ways to cope with deterioration due to progression of dementia and ultimately loss)
-addressing ethical dilemmas (autonomy vs safety, justice)
Having said all of the above, the most important intervention is having community support. As we can see the level of care for dementia highlights community involvement from level 1-3. Only level 4 is specialised care.
Without community cohesion, we will not be able to deliver dementia care which is comprehensive, hollistic and inclusive. Afterall dementia not only affects the person but it changes everyone.
For more indepth information, kindly refer to the textbook titled family caregiver distress by dollores gallagher-thompson et al.